Chain Reaction: 2 weeks to decide

Tuesday, January 18, 2011

2 weeks to decide

Hi All:

I have 2 weeks to decide what my next MS Drug will be and if I want to play guinea pig and take place in a 2 year drug trial where they assign my drug to me. I think I am going to choose my own drug at this point. BUT - WHICH ONE?!

This year alone I've had two relapses with consistent symptom progression and I noticed my doctor wrote on my chart SPMS when I left the other day. He and I will discuss that next time. In the meantime, I need to choose the best drug to fight my Spinal MS, Neuropathy, Problems with Balance and Walking as well as just PAIN. So, in the comments please give me your personal experience/feedback or tell me why you're an advocate for your drug of choice.

I am researching everything like crazy but for the next two weeks I need to cram in allot of information to try to make an informed decision. I appreciate all opinions offered to me.

Thanks!

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For those who don't know MS first hand - An Important Excerpt from Wikipedia on MS:

The person with MS can suffer almost any neurological symptom or sign, including changes in sensation (hypoesthesias and paraesthesias), muscle weakness, muscle spasms, or difficulty in moving;^[15] difficulties with coordination and balance (ataxia);^[15] problems in speech (dysarthria) or swallowing (dysphagia),^[16] visual problems (nystagmus, optic neuritis, or diplopia),^[17] fatigue, acute or chronic pain,^[18]^[19] and bladder and bowel difficulties.^[19]^[20] Cognitive impairment of varying degrees and emotional symptoms of depression or unstable mood are also common.^[21]^[22] The main clinical measure of disability progression and symptom severity is the Expanded Disability Status Scale or EDSS.^[23]

Multiple sclerosis relapses are often unpredictable, occurring without warning and without obvious inciting factors. Some attacks, however, are preceded by common triggers. Relapses occur more frequently during spring and summer.^[24] Infections such as the common cold, influenza, or gastroenteritis increase the risk of relapse.^[25]^[26] Stress may also trigger an attack.