How do you continue to live a life filled with hopes and dreams after your MS Diagnosis?
What do you do to overcome missing your healthy PRE-MS days and address your health fully?
Do you make a "Bucket List" and if so, do you feel like you are rushing against the clock of disability?
How does one get to "acceptance" of their MS Diagnosis? Are you there yet?
And Finally, do you have trouble accepting help from others because before you could do it all and now you just can't?
6 comments:
Hi
Have just continued ,living sadly no dreams as such though love the idea of having dreams.
Find it very difficult that I can do nothing for myself help was difficult now its all being done
for me by Richie I no longer fight it because there is no point would be like fighting myself.
Do not accept that I am so handicapped and it will get worse.
Do think its important to be in the here and now.
So enjoy what I have.
Take care.
Love,
Herrad
Hi
Have just continued ,living sadly no dreams as such though love the idea of having dreams.
Find it very difficult that I can do nothing for myself help was difficult now its all being done
for me by Richie I no longer fight it because there is no point would be like fighting myself.
Do not accept that I am so handicapped and it will get worse.
Do think its important to be in the here and now.
So enjoy what I have.
Take care.
Love,
Herrad
Phew! Lots to think about - should we use these as chat topics for the next few months???
This is why I've started talking to a Life Coach. So, let me get back to you on this one...
Hi Lanette--
I think we're on the same wavelength this week. My biggest problem is not knowing how to fill up my time. I have a difficult time staying out in the workforce and maintaining steady employment, so when I'm home I feel better and I'm chomping at the bit. So it's a vicious circle for me: stay home, get bored, try working part-time outside the home, overdo it, have a relapse, have no protection under the Family Medical Leave Act, get laid off, get depressed, recuperate, feel good at home, get bored.
Yup. That about sums up my last 5 years. I wish there was more steady, fulfilling work from home. I'm working on freelance writing things, but they are few and far between at this point. So it's a matter of staying motivated, which I'm currently not. I feel we all have a right to pursue the kinds of careers that we want (not settle for something just to pay the bills), but that becomes difficult to find from an at-home standpoint. Like a needle in a haystack.
Sorry I'm so jaded right now. I'm usually not, but I'm sputtering right now and need a good jumpstart to a decent work load. I always think in my mind "I'm here! Just toss me the ball!"
Well, we can always kvetch in the chatroom over gimlets!...LOL
It is difficult to sum that up in a few short sentences. I think I'll direct you to a blog post I wrote about this that discusses how my life went on after my diagnosis in May 2008. It's a "Life Goes On" sort of thing.
Peace,
Kelley
Sometimes ms impact feels like aging at hyper speed - ala a medical cv more akin to my 80-year-old grandma than to my 35-year-old sister! - soooo if that be the case then couldn't it equally be described as 'mature beyond our years' - and that don't seem like such a bad thing to have happen???
I once saw an interview with John Muir (mountaineer/rock climbing dude extraordinaire who lives in a sleepy little rockclimbing mecca) and he commented on the morning commuter traffic he had been caught up in on his way into the city for the interview that: '5 million people CAN be wrong'.
It's becoming something of a mantra for me when, yet again, I have to approach something differently or plain say 'no' or search for an alternate - and turns out it is not necessarily a bad thing ;)
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