My Brain Looks Like a Christmas Tree

Monday I had my first Tysabri Infusion. It went fine, no side effects afterwards. Though they did have to give me Ativan and Xanax to stop Anxiety. And I told them to just start it and not tell me...lol

I had the JC Virus Blood Test before my first infusion and that will take 4-6 weeks to come back and they will email me the results. So I am now hoping this drug works for me, I've met people it worked miracles for and also people it did nothing for. I need a miracle! Way to many symptoms and new lesions my brain is lighting up like a Christmas tree in addition to the new cervical spine lesions I have at C2 and C5 THROUGH C7 - that just can't be good - they found one in my brain stem as well. I am NOT happy. But those of you who read this can all relate. So no pity party here, just frustration.

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So have any of you ever had these symptoms (new to me):

You are laying in bed say on your side and you flex your feet to stretch and a buzzing just goes through your body. Same buzzing happens if I awake, laying on my side and I lift my arm up to stretch it out. I'm not moving my neck mind you JUST my limbs.

This one is really bothersome: I could be doing anything, walking into a restaurant (like the other day) and all of a sudden my entire left side - Head, Neck, Shoulder, arm, hand just gets the weird buzzing sensation and goes completely numb. I dropped my purse. Luckily hubs was there to hold on to, this one really freaks me out because it feels like I have a blood clot or something traveling...I don't (I was checked at the ER for it). Lasts for 5-10 min and passes. But comes out of nowhere, I'm trying to keep track if I'm moving my head a certain way or something.

Of course there is the Buzzing down my entire body/spine when I look down and even sometimes left or right in any capacity.

That round of IV Steroids 6 weeks ago did not last very long. I'm back to where I was and SO Fatigued it's nuts! And they tell me it will take 3-6 infusions of Tysabri (3-6 months) until I notice a difference? My husband will divorce me by then if he has to do all he is doing now. Ugh.

On the Plus side my MS Walk Team the Mid South Marchers has raised over 5K toward our 10K goal. Being team captain is challenging for 37 walkers. But Fun when you can't leave your couch very often! :)

So let me know if you've had any of the above symptoms and what helped you to heal them?